The Antidote to Corona virus Anger

I am mad at the coronavirus and those who do not self-quarantine because they'll be inconvenienced by the loss of a couple of weeks of their time. We've already lost so much more time living a normal life, because of cancer and now we have to fear another risk to our son's life. And I have to worry about my daughter not getting sick so that she can save my son. 

This anger bubbles up and threatens my tight grip on sanity the last few days. Then I see the rare moments where my son is still joyful or smirking at something he finds amusing and I think if he can still find reasons to not be angry and depressed, so can I. He is my primary reason for letting go of the moments of anger and frustration because I do not have energy to waste on negativity of any kind.

I feel for everyone who has to be off work or arrange activities for their kids for extra weeks, but is the right thing to do to protect everyone right now and it could literally save my son's life. Given all of his sacrifices it seems fair everyone has to sacrifice a little right now. Sorry...I don't mean to wish bad things on any of you...Just want people to understand that we're all in this together and need each other's help for survival.

On the physical side, his damaged skin has miraculously begun to heal thanks to an amazing cream called Triad recommended by the wound care team. It's still hard to see it all peel off of him, but he is doing better. 

Not to gross you out, but as we were cleaning off the miracle cream his skin was literally coming off like this.

And once cleaned his new beautiful skin was revealed as though he was a beautiful butterfly emerging.

He will also need to have another lumbar puncture with intrathecal chemo tomorrow (Tuesday his back was too raw and they feared infection)  and he has a ton of scans and consults next week, but we'll get through them.

Our video conference today with Sick Kids Radiology team went well. Starting to feel routine...side effects very similar to chemo...low dose of radiation (9 treatments in 6 days) so shouldn't be harder than chemo they tell me. Nice group of doctors. 

So we're gearing up for one more week before the next battle in this war. We meet them in person early morning on Monday, March 23, so there's little time from expected discharge from CHEO on March 20 to having to head to Toronto March 22. 

Keep sending your positivity and prayers of strength. We all need strength right now (not just our family) and are praying that all of you will remain strong, healthy and will continue to be good to each other through these uncertain times the way that you have all been so kind to us these months. Big love to all of you!