Ollie is an energetic, determined and loveable 13-year old who began developing a bump on his neck in summer 2019. In November 2019 he was diagnosed with Anaplastic Large Cell Lymphoma ALK Positive. After multiple relapses in his central nervous system, which caused him to go blind, he had a stem cell transplant in July 2020. He is now a long-term survivor with more than 5-years in remission. This blog shares updates on his wellness and his family's advocacy efforts.

The Brave Boy and Therapeutic Clowns at CHEO (plus Mario photobombing)
Friday, 6 March 2020
Bacterial plan changers
Ollie has not one, but two bacterial infections. One in his PICC line (apparently very common) and the other systemically in his body. Over the next few days they'll confirm the exact types, but in the meantime they have him on 3 different antibiotics and will make any changes needed when they know.
In the meantime we are told it likely means 10-14 days in hospital. This means no Toronto next week. Ironically I didn't want to go twice in two weeks and tax Ollie that way, but didn't get my way originally. Now it seems I am. We're waiting to hear from Sick Kids Hospital on how or if this changes the rest of the plan. I am hopeful that we'll still go for end of the month and just do scans there before we start days later.
Ollie is pretty tired and the mucusitus was very painful today so he slept a lot. We're all bummed out that this stay will be longer than hoped, but the show must go on.
Not much else to report at the moment. Wishing you all an uneventful and peaceful weekend.
Subscribe to:
Post Comments (Atom)
5 Years: Official Long-term Survival
[Photo Description: Abby hugs Ollie to her as they pose with a cake reading, "Re-birthday/Hero Day #5!". Both are smil...
-
[Photo description: Ollie gives a thumbs up and eats a slice of pepperoni pizza from Gabriel Pizza in the Candlelighters Ottawa ...
-
Everything can change in a heartbeat. Yesterday we were having a great evening playing Yahtzee as a family with our boy wonder beating us a...
-
The last few days have been "brutiful". On the one hand we had the excitement and beauty of the kindness from the Gabr...
Dawnie, you will be able to deliver an entire channel of Ted Talks... Let’s start a list of potential specialist lecture titles:
ReplyDelete1) Patience, Resilience and How I conquered the temptation to “Go Hospital”
2) Me - Sweat the small stuff? ... never again
3) Change-Schmange - Increasing your tolerance to change when it dominates your world.
Followed by...
4) Control-Schmontrol - You think you’re in control? Have I got news for you.
5) Blogging for sanity
Thoughts?
Xoxo Mary