We have decided to be open and honest about this journey to avoid the misinformation that can happen when people don't know what is really happening. We also knew we'd have bad days and that we'd have to stop doing certain things during this journey and wanted people we care about to understand why. I just want to say that the outpouring of love and support from our community has been overwhelming and beautiful. We have received more positive messages and offers of help than we ever could have imagined and are so grateful.
At first I felt awkward accepting the kind offers of people because we are so used to being on the giving end versus the receiving one, but friends and family have kindly insisted that this is our time to receive and that people just want to help so we need to let them.
For example, many of you have stopped by with delicious food since you heard the news, so our dear friend Maria started The Acosta-Pickering Family Meal Train to organize this and so many amazing people have kindly signed up to keep us fed with meals made with love while Ollie undergoes chemo treatment in the coming weeks and months.
We also know that some of you (like me) aren't necessarily the type who prefer to bring food, so we have added a list of what we need right now to the sidebar of this blog which we promise to keep updated. Please note that if we are looking for something we are always happy to buy it if you find it for us, or borrow it and return it when we no longer need it. So many of you have dropped by Lego sets, books and other amusements for Ollie in the last days and each one brings him joy at a difficult time. If you do lend us something, please put your name on it (masking tape works) so that we can be sure to return it to you!
A super big thank you to all of you for everything you are doing. Each act of kindness makes me so very grateful that we are part of this amazing community and reminds us that we are blessed despite everything.
Ollie is an energetic, determined and loveable 11-year old who began developing a bump on his neck in summer 2019. In November 2019 he was diagnosed with Anaplastic Large Cell Lymphoma ALK Positive. After multiple relapses in his central nervous system, which caused him to go blind, he had a stem cell transplant in July 2020. This blog shares updates on his wellness and his family's advocacy efforts.
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Es inmensa la solidaridad y tan posible que sea real.. gracias a todas las personas que están ayudando a nuestra familia .. la vida siempre devuelve todo aquello que se hace con tanto amor ..
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