Ollie is an energetic, determined and loveable 13-year old who began developing a bump on his neck in summer 2019. In November 2019 he was diagnosed with Anaplastic Large Cell Lymphoma ALK Positive. After multiple relapses in his central nervous system, which caused him to go blind, he had a stem cell transplant in July 2020. He is now a long-term survivor with more than 5-years in remission. This blog shares updates on his wellness and his family's advocacy efforts.

The Brave Boy and Therapeutic Clowns at CHEO (plus Mario photobombing)
Thursday, 30 January 2020
A "Quiet" Day
It's been a pretty quiet, stable day. That's a good day right now and we'll take it.
Ollie slept much of the day with little pain after a rough night of breathing issues.
Mid-afternoon he had another lumbar puncture (his 5th so far, with 4 in the last 12 days) to remove the extra cerebrospinal fluid that is adding pressure on his brain. This time it was less than the previous two times, so this was good news. They also gave him the inter-thecal chemo inn his spine. I told Ollie there is a war in his brain between the chemotherapy warriors and the lymphoma villains and the warriors are winning so far, blasting the lymphoma out.
Neurology came by and said his EEG shows that he does not have epilepsy, but there is irregular activity in his brain and it is evident with his blindness that there is more to figure out.
Acute Pain Services added Melatonin to his orders to try to jeep him sleep better. Hoping that works tonight.
Dear friend, Toni came to bring me delicious dinner and all the news from St. George.
All in all a simple day (funny that a simple day now includes a lumbar puncture).
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Glad to hear he's getting some sleep. Hope you can get some too! Sending virtual hugs.
ReplyDeleteGlad he was able to get some sleep. Hope you can too, Mama. Sending love today, same as every day. ��
ReplyDeleteMe alegra que pudiera descansar un poco y que haya sido un día un poco más tranquilo. Todo esto es posible por la fuerza y el amor de la familia. Admiración profunda y todos mi amor y energía sanadora. Besos y desnuda tu también
ReplyDeleteSoy Claudia Camacho, primitos hermosos
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