On Wednesday we had a visit from our POGO Interlink Nurse, Graham Robinson won offered to come to the house and help us with some paperwork and planning for my leave at work. I am so fortunate to be a federal public servant and my employers are phenomenal. I have enough leave banked to be off paid until February 24, and then will be using services like EI to help out. We are also so fortunate to have been advised by our investment and insurance advisor long ago to buy the policies that have critical illness insurance for the kids, so we will have extra money coming from that which will help with the loss of income since EI only pays 43% of my salary.
Ollie also got a new bunk bed on Wednesday that had been planned long before diagnosis, but the timing is great to keep things interesting when he's home so much.
Thursday I had to go Christmas shopping for new washer and dryer because of course the bearings on the current set decided to die in the last two weeks. Merry Christmas to Mommy and Daddy I guess! LOL
On Thursday afternoon, it was the kids' Christmas concert at school. Since it was Abby's last one given she's graduating this year, we arranged for Mario to work from home and be with Ollie so I could attend. Her performance choir did a great job, as did her class.
A few days before the concert Ollie's teacher, Mrs. Didiomete suggested he might want to join the concert online via Google Hangouts. So Mrs. D, the principal, Mrs. Philippe and our School Council Chair and dear friend, Siobhan organized the technology to be set-up at the concert so Ollie had the best seat in the house (while mommy arrived late and was standing at the back! ;-)) and could watch everything from the comfort of home. At the beginning Mrs. Philippe even had everyone at the event say hello to Ollie! It was very touching to have him there and when his class's turn came and they sang their hearts out, I know he was glad to see them all.
We are so thankful for the thoughtfulness of the St. G teaching team. They are working hard to make sure he still feels part of the school despite his isolation this year.
We rounded out the busy day with a family NERF war that evening. Mom, Dad and Abby are now his primary playmates, so playtime at night is important and frankly, the laughing together always makes us all feel better.
Stay tuned for post # 2 of the day shortly...
No comments:
Post a Comment
We appreciate your positive thoughts and comments about our journey. If preferred, you can send us a private message using the Contact Form on this page.