Ollie is an energetic, determined and loveable 13-year old who began developing a bump on his neck in summer 2019. In November 2019 he was diagnosed with Anaplastic Large Cell Lymphoma ALK Positive. After multiple relapses in his central nervous system, which caused him to go blind, he had a stem cell transplant in July 2020. He is now a long-term survivor with more than 5-years in remission. This blog shares updates on his wellness and his family's advocacy efforts.

The Brave Boy and Therapeutic Clowns at CHEO (plus Mario photobombing)
Friday, 17 January 2020
Literal Isolation
He's still at CHEO being a superhero infection fighter. No fever since this morning, although headache and nausea off and on.
We're now literally not just feeling isolated, but are actually in isolation, so no visitors or leaving the room for him until he's well. Naturally this time he brought Beyblades and hoped to make a new friend here to play with.
Mario took the day off and let Abby sleep in (who indignantly protested when she woke up that she could NOT miss school...She's totally my daughter), then took her to school late and came to be with us for the rest of the day. Ollie slept a lot today.
Dear friends had Abby after school, fed her dinner and took her out to Kanata for a special youth group activity and later brought her back.
Ollie took the painful and expensive, yet magical G-CSF injection again tonight to try to boost his neutrophils, so here's hoping it works like last time.
We're tired, but doing okay. We're in limbo about when we'll go home and even if there'll be chemo this week or if it will be delayed, as it all depends on his blood counts between now and Monday.
Off to bed for me now. Your prayers and encouragement have been helpful today. Sweet dreams to all.
Subscribe to:
Post Comments (Atom)
5 Years: Official Long-term Survival
[Photo Description: Abby hugs Ollie to her as they pose with a cake reading, "Re-birthday/Hero Day #5!". Both are smil...
-
[Photo description: Ollie gives a thumbs up and eats a slice of pepperoni pizza from Gabriel Pizza in the Candlelighters Ottawa ...
-
Everything can change in a heartbeat. Yesterday we were having a great evening playing Yahtzee as a family with our boy wonder beating us a...
-
The last few days have been "brutiful". On the one hand we had the excitement and beauty of the kindness from the Gabr...
Amor amor amor ... Mis pensamientos alientan y los abrazan, Caya Camacho
ReplyDelete